I can spend hours searching online for answers if the mood strikes me. I fall in and out of feeling the need to search for similar stories to mine and looking for new research, concepts or thoughts. I still feel like I’m looking for what is wrong with me and expecting to find one answer when in fact it’s many.
So when I came across this article recently (even though it’s a few years old) I was pretty astounded to find that almost all of the causes of fibromyalgia, I have at one time or other in the last 2 years identified in myself. When the doctor diagnosed me with fibro, it did nothing for me, because in my mind, I was saying ‘I’ve got pain’ and he was saying ‘yes you’ve got pain, it’s called fibromyalgia’. But to see here in black and white all the areas I have become familiar with over the last 2 years felt encouraging.
I don’t think they are in any order especially but first gluten… I have always eaten wheat and bread and 6 months into feeling like hell I was diagnosed with a wheat allergy, mild but still present in my blood. Then, Candida overgrowth. I spent a month with a bad taste in the back of my throat, only a few months after finishing taking anti-inflammatorys’ (that were acting on nothing because the pain was not inflammatory in nature) and a naturopath diagnosed me with candida overgrowth by looking at my tongue. I had a permanent white coat over the very back third of my tongue. It’s no longer there these days.
Thyroid – the big one! All my testable levels were in the ‘normal range’ but I responded well to thyroid medication. A slow phase onto the medication found what appears to be the optimal levels for me, 40 micrograms of Tertroxin (T3) and 50 micrograms of Euthyrox (T4) and a blood test confirmed antibodies to my thyroid (again in the normal range) suggested Hashimotos.
Vitamin Deficiencies. Yep these too! A doctor very early on found me to be severely Vit D, B and magnesium deficient, exactly as suggested in the article, and I was experiencing frightening pins and needles in my arms and legs daily. I don’t get that anymore. I also take Zinc still.
SIBO – I’ve got a breath test sitting on my desk to do in the next couple of weeks as suggested by my doctor in relation to some high estrogen results on a blood test.
Adrenal Fatigue, Mycotoxins, MTHFR, and mercury toxicity. These have all been discussed around me but no evidence yet that I experience any of those. I have amalgam fillings but my dentist tells me there’s no evidence they are bad for me. Plus it’s really expensive to have them removed. Adrenal fatigue I don’t necessarily believe should be in this list, there is nothing to test for it and I am also not convinced it’s not a byproduct rather than a cause.
Glutathione Deficiency. This is the other supplement I take regularly, NAC or N-Acetylcysteine, the precursor to glutathione which helps in it’s production which my doctor recently discovered I was low in homocysteine. I think if I have not responded well to the next blood tests she will probably look at the MTHFR and methylation cycle issues.
Ok so 6/10 aint bad! What this list did for me was help me realise that I’m on the right path. I suspect in 5 years, maybe 10, the actual biology and chemistry in fibromyalgia will be better understood as well as the how – how does it make you feel pain? I am sure this is all linked with Chronic Fatigue which has really outlived its name and while being a great description of how you feel doesn’t actually tell you anything about why. It’s more like an umbrella name for a whole lot of conditions. Science will catch up first to explain the why and then slowly societal attitudes will follow. There may be a whole lot of people who have some apologising to do!