I've been writing mostly in a separate diary recently, I'm trying to pour everything out. It works sometimes to keep me writing when I don't feel like pouring it all out into the world. I've noticed I write a lot about 'I' and 'me'. Understandable I suppose but I'm trying to find new ways to … Continue reading Make hay while the sun shines
I can spend hours searching online for answers if the mood strikes me. I fall in and out of feeling the need to search for similar stories to mine and looking for new research, concepts or thoughts. I still feel like I'm looking for what is wrong with me and expecting to find one answer … Continue reading Some lists are good.
One day I will not think about being ill anymore. I will not worry about how many hours of sleep I have had or will get. I won't think about the food I'm eating and wonder if it's hurting my body. I won't have anymore blood tests and everyone will have forgotten this happened. One … Continue reading One day…
This may be the dumbest analogy you've ever read but it dawned on me today that managing recovery from a long-term illness is like handling a child's diet... Bear with me... My 4-year-old does not like vegetables - which 4 year old does? - and trying to get them into her diet is torturous for … Continue reading Dumb analogies
...but there is an 'M' and an 'E'... was always my response when people threw this hackneyed phrase at me in some training session. Not because I didn't believe in working in teams, but just to make light of the laziness of using a saying to try to give emphasis to an agenda. When I left … Continue reading There’s no I in TEAM…
They're easy to read Lists gives you a sense of achievement People like to see items on lists they've already completed to check them off No imagination on the part of the writers? Attention spans are ... Have you noticed they never seem to go much higher than the mid-teens? Think about the psychology. I've read listicles citing the three … Continue reading The rise of the listicle – why is everything in list form these days?
One bit of advice you will receive when dealing with a chronic illness is to 'get your life how you want it'. I first wrote about this idea here https://strangelabel.wordpress.com/2016/01/14/phraseology/ but only in brief because I hadn't tackled it yet. And here's the thing... it's not easy. It sounds easy. It sounds wonderful. But what I've discovered … Continue reading Get your life how you want it
Yesterday I visited the third new doctor at Integrative Health Solutions (the other two having left shortly after I saw them!) and came away with a new term for what they think is going on with me. HPA Axis Dysregulation. Turns out, according to the literature they gave me, it's the correct term for what people label … Continue reading Another new diagnosis
Over the year and a half that I've been unwell I've had various symptoms, some worrying, some amusing that may or may not be related to hypothyroidism. And the only reason I think that is my diagnosis (after post viral fatigue, human Parvovirus B19, Glandular Fever, vitamin deficiencies and Fibromyalgia) is because the thyroid medication is working. More … Continue reading My eyelids are peeling
I was told by the clinical psychologist on Friday that I need a routine. That this would help, to plan in rest time, work time and time for myself. Afterwards I sat alone, pondering the word routine. Is that all? Is that how little she feels is happening in my life? That a simple routine would … Continue reading The day of rest