One bit of advice you will receive when dealing with a chronic illness is to 'get your life how you want it'. I first wrote about this idea here https://strangelabel.wordpress.com/2016/01/14/phraseology/ but only in brief because I hadn't tackled it yet. And here's the thing... it's not easy. It sounds easy. It sounds wonderful. But what I've discovered … Continue reading Get your life how you want it
Yesterday I visited the third new doctor at Integrative Health Solutions (the other two having left shortly after I saw them!) and came away with a new term for what they think is going on with me. HPA Axis Dysregulation. Turns out, according to the literature they gave me, it's the correct term for what people label … Continue reading Another new diagnosis
Over the year and a half that I've been unwell I've had various symptoms, some worrying, some amusing that may or may not be related to hypothyroidism. And the only reason I think that is my diagnosis (after post viral fatigue, human Parvovirus B19, Glandular Fever, vitamin deficiencies and Fibromyalgia) is because the thyroid medication is working. More … Continue reading My eyelids are peeling
I was told by the clinical psychologist on Friday that I need a routine. That this would help, to plan in rest time, work time and time for myself. Afterwards I sat alone, pondering the word routine. Is that all? Is that how little she feels is happening in my life? That a simple routine would … Continue reading The day of rest
This'll be a quick update - I'm having trouble with wooziness in the head and looking at computer screens doesn't help. I expected that after a week of training, long days in a classroom environment, hotel room beds, changed diet and meeting new people I would have some repercussions but I fully expected fatigue not dizziness. … Continue reading What’s your unwell?
Two days ago I saw a new GP from the integrative (read open minded) group. Only because my other doctor was transferred interstate, however I was glad to have someone new to look over my history, and the result made it clear that it is worth seeking second/third/fourth opinions - if you're not satisfied with … Continue reading It is worth pushing on…
One thing I can say for sure, since I've been taking the thyroid hormone liothyronine sodium (Tertroxin) is that I have been able to do more in my day. I don't exactly have more energy, but less fatigue and a feeling of being able to achieve more. I'm up and down though and I'm not … Continue reading An update on me
Strap yourselves in... Yesterday I travelled over an hour's round trip for my second appointment with the new doctor who I had placed quite a bit of hope in (realised or not) and when I got there... they'd given my appointment away. Not only that, the 3 receptionists there made a big deal of asking everyone … Continue reading I have a lot to say
Sometimes you've got to work really hard to find things to congratulate yourself on during the day. Today, I set up a travel blog, something I've been wanting to do for months now. But I feel dissatisfied at the end of the day. Why? Shouldn't I congratulate myself on achieving this? Maybe it's prickling skin … Continue reading Congratulations!
Reading back over my post about insomnia and how I promised to take the Circadin for one more week to see how it went, well, that following night, I stopped taking it. A week isn't really long enough for something to take affect, but I just didn't want to waste any more time with drowsiness and … Continue reading It’s funny…